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First-Ever Progressive MS Awareness Day

This week saw several MS advocacy groups focusing attention on progressive forms of MS.

author-avatarBy Trevis Gleason

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Few treatment options exist for progressive forms of MS, but at long last, awareness of this stage of MS is growing.
Few treatment options exist for progressive forms of MS, but at long last, awareness of this stage of MS is growing.
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If, like me, you listen to your morning radio broadcast blather on as you get your day going, you often hear of birthdays, anniversaries, and “awareness days” which fall on the day for which we prepare. There are A LOT of awareness days.

You may have heard that March 28 marked the first-ever observance of Progressive MS Awareness Day. If not, well … you missed it, for this year, anyway.

But don’t feel bad; you weren’t alone (note that I’m writing about it after the fact). And you can still find the conversations it spawned on social media by using the hashtag #ProgressiveMSDay.

Origins of #ProgressiveMSDay Linked to Ocrevus

Progressive MS Awareness Day comes on the first anniversary of approval of the first drug for progressive forms of multiple sclerosis, Ocrevus (ocrelizumab). The anniversary was not coincidental, as it was the drug’s maker, Genentech, which started the idea of the awareness day.

Still, whoever had the idea, I think it’s a good one.

Several videos featuring individuals with progressive forms of MS that are posted on the drug-maker’s website are well-made and thought-provoking.

A number of MS patient advocacy organizations got on board for the day, and I’m told that several local legislative bodies proclaimed the day for progressive multiple sclerosis awareness.

RELATED:Ocrevus After One Year on the Market: What Do We Know Now?

More Awareness, Research, and Treatments Are Needed for Progressive MS

As a person living with , I know the need for more awareness, more research, and more treatments for progressive MS. In an article I coauthored for the journalLancet Neurologyin 2015, this need was articulated to the best scientific minds of our age.

No one bought us flowers or chocolates, made us special meals, or took us out for the occasion, but it was a start.

So, if you missed it this year and want to make sure you’re in on the gig for the second Progressive MS Awareness Day, mark your calendars now for March 28, 2019.

These things start slowly, but we’ll hope it catches on.

Wishing you and your family the best of health.

Cheers,

Trevis

My book, Chef Interrupted, is available on Amazon. Follow me on the Life With MS Facebook page and on Twitter, and subscribe to Life With Multiple Sclerosis.

Last Updated:3/29/2018
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Video: Living with Multiple Sclerosis - 1st Video after Ocrevus Infusion!

First-Ever Progressive MS Awareness Day
First-Ever Progressive MS Awareness Day images

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2019 year - First-Ever Progressive MS Awareness Day pictures

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First-Ever Progressive MS Awareness Day forecast photo

First-Ever Progressive MS Awareness Day photo
First-Ever Progressive MS Awareness Day images

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First-Ever Progressive MS Awareness Day new pics

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photo First-Ever Progressive MS Awareness Day

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Watch First-Ever Progressive MS Awareness Day video

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Date: 12.12.2018, 20:44 / Views: 81551